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A rare disease causes this woman from the United Kingdom to see people’s faces as if they were dragons—neurologists explain this strange disorder

Prosopometamorphopsia is a rare neurological condition that distorts how people perceive faces, often causing them to look like dragons or other mythical creatures. While there’s no cure, treatment options are available to help manage symptoms. Learn more about this fascinating condition and how it affects those who live with it.

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A rare disease causes this woman from the United Kingdom: Imagine waking up every day, seeing the people around you, but with a twist. Their faces don’t look human—maybe they look like dragons or creatures straight out of a fantasy novel. Sounds like something from a science fiction movie, right? But for a woman in the United Kingdom, this strange and rare experience is a reality. This condition, called prosopometamorphopsia, causes people to perceive faces as distorted, sometimes as something as wild as dragons. Neurologists have been scratching their heads, trying to understand the mechanisms behind this fascinating condition. Here’s everything you need to know about it.

A rare disease causes this woman from the United Kingdom

Prosopometamorphopsia may sound like something from a fantasy novel, but it’s a real, medically recognized condition that alters how people perceive faces. The good news is that with the right treatment, people with PMO can manage their symptoms and improve their daily interactions. While medications can help, PMO remains a mysterious condition that requires further research to fully understand. For those living with this condition, it’s important to have a solid support system and seek help from healthcare professionals who specialize in neurological disorders.

A rare disease causes this woman from the United Kingdom to see people’s faces as if they were dragons
A rare disease causes this woman from the United Kingdom to see people’s faces as if they were dragons
TopicDetails
Condition NameProsopometamorphopsia
Primary SymptomsFaces appear as distorted or dragon-like features
DiagnosisIdentified through neurological exams and MRI scans
CausesAbnormal brain activity in the ventral occipitotemporal cortex
Treatment OptionsMedication (valproic acid, rivastigmine) to manage symptoms
StatisticsExtremely rare; case study reported in 2023
Official SourceLiveScience

What Is Prosopometamorphopsia?

At its core, prosopometamorphopsia (PMO) is a neurological condition that causes a person to see distorted faces—faces that might look alien, grotesque, or in the case of one famous case, like dragons. People with PMO still recognize the person in front of them but their brain distorts the face into something else entirely.

For example, instead of seeing a friend’s normal face, someone with PMO might perceive their friend’s face as having pointy ears, sharp teeth, or elongated features. The condition doesn’t affect their ability to recognize faces as “theirs” but changes how they visually interpret them. This can be incredibly disturbing, as it often creates feelings of confusion or anxiety when interacting with others.

How Do A rare disease causes this woman from the United Kingdom?

Face‑processing brain activity
Face‑processing brain activity

While PMO sounds like something out of a fantasy novel, its roots lie in the brain’s face-processing regions. Faces are processed in a very specific area of the brain, primarily the ventral occipitotemporal cortex. This part of the brain helps identify and decode the facial features that help us recognize people.

In cases of PMO, this region of the brain becomes “confused” or experiences abnormal activity, which distorts the perception of faces. Imagine that instead of interpreting a face as a set of eyes, a nose, and a mouth, the brain reinterprets it as something entirely different, like a dragon. Researchers believe this phenomenon occurs because of misfiring signals between different parts of the brain responsible for visual and emotional recognition.

Causes and Risk Factors of Prosopometamorphopsia

There isn’t a single known cause of prosopometamorphopsia, but a few factors may contribute to its development:

  1. Neurological Damage: Brain damage, such as lesions or injuries in the ventral occipitotemporal cortex, is one potential cause.
  2. Genetic Predisposition: While not yet proven, genetics may play a role in some cases.
  3. Other Brain Disorders: Conditions like dementia, schizophrenia, and epilepsy may be associated with the development of PMO.

For instance, a woman in the UK who had been experiencing face distortions for years was diagnosed with PMO after an MRI scan showed lesions in her brain. Doctors believe these lesions affected the way her brain processed facial information.

Key Symptoms of Prosopometamorphopsia

People with PMO typically report that they see faces morph into strange shapes or creatures. These creatures might appear as dragons, demons, or even alien-like figures. Other symptoms can include:

  • Faces appearing normal at first, but slowly morphing into something alien as time passes.
  • Objects or even walls appearing with faces, making it hard to distinguish between what’s real and what’s a hallucination.
  • Feeling anxiety or disorientation during social interactions because the faces you see aren’t what they seem.

It’s important to note that while PMO can feel terrifying, people who experience it still recognize the people in their lives, but they perceive their appearance as altered.

fMRI response graphs
fMRI response graphs

Diagnosing Prosopometamorphopsia

Diagnosing PMO isn’t always straightforward because it’s a rare condition and often goes unrecognized by doctors. The first step in diagnosis involves a thorough examination, which typically includes:

  1. MRI Scans: Used to identify any abnormalities or lesions in the brain.
  2. EEG (Electroencephalogram): A test that records brain wave activity to spot unusual electrical patterns.
  3. Neuropsychological Tests: These tests evaluate the brain’s processing abilities, including its facial recognition capabilities.

Treatment Options for Prosopometamorphopsia

As of now, there isn’t a one-size-fits-all treatment for PMO, but some medications can help alleviate the symptoms. In the case of the UK woman, doctors prescribed a combination of medications to help manage her visual distortions:

  1. Valproic Acid: Initially prescribed to reduce visual distortions, but it caused unwanted side effects.
  2. Rivastigmine: More recently, doctors switched her to rivastigmine, which helped reduce the visual and auditory hallucinations, making it easier for her to interact with others.

Although these treatments help manage the condition, there’s no permanent cure for PMO, and the condition often requires long-term management.

Living with Prosopometamorphopsia: What You Should Know

Living with prosopometamorphopsia can be challenging, especially when it affects how you see others. However, with the right support and understanding, people can manage the condition and still lead fulfilling lives. Here are a few tips for those living with PMO:

  • Seek professional help: It’s important to consult with neurologists or psychologists who specialize in brain disorders to develop a treatment plan that works for you.
  • Support from loved ones: PMO can be isolating, but having a strong support network can help you cope with the emotional and psychological effects of the condition.
  • Practice self-care: Mental health is just as important as physical health. Mindfulness practices or stress-relief techniques can help reduce anxiety and improve overall well-being.

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